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Understanding the Social Experiences of Living with Diabetes in Canada: A Look at Stigma, Judgement, and Discrimination

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Diabetes is more than just a medical condition; it's a complex challenge that affects nearly 4 million Canadians. To shed light on the emotional and social landscapes navigated by individuals living with diabetes, Diabetes Canada recently published a groundbreaking report titled Social Experiences of Living with Diabetes in Canada. This national survey highlights the stigma, judgement, and discrimination that many face, offering critical insights into their everyday lives.


Introduction to the Report


The aim of the report is clear: to reshape the narrative surrounding diabetes and to foster greater empathy and understanding. By collecting data from over 1,800 participants—1,013 with type 2 diabetes (T2D) and 786 with type 1 diabetes (T1D)—the survey delves deep into the multifaceted experiences of those living with this chronic illness. Conducted between August 18 and November 15, 2023, the survey provides a comprehensive view of the stigma associated with diabetes, as well as the emotional toll it takes on individuals.


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Key Findings: The Weight of Stigma


Blame and Shame


One of the most troubling findings of the report is the overwhelming sense of blame and shame experienced by individuals with diabetes. 86% of people with T1D and 69% of those with T2D reported feeling blamed for their condition, often facing unfair assumptions about their lifestyle choices. Misconceptions about diabetes—particularly the idea that it is a "lifestyle disease"—perpetuate stigma and can lead to feelings of isolation.


Moreover, 54% of individuals with T1D and 31% of those with T2D indicated that they have been treated differently due to their diabetes. These statistics are not just numbers; they reflect the painful reality of judgement and discrimination that impacts daily life and mental health.


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Emotional Distress


Living with diabetes also brings emotional challenges. According to the report, 46% of individuals with T1D and 31% of those with T2D reported experiencing significant distress related to their condition. This distress is often tied to the worry about managing complications, the burden of constant self-monitoring, and the fear of judgement from others.


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Seeking Support


The report reveals that many individuals with diabetes are hesitant to seek support or share their needs. 60% of those with T1D and 77% of those with T2D never or rarely participate in community activities aimed at improving care. This reluctance is often compounded by the stigma attached to their condition, further isolating them from potential sources of support.


The Impact on Quality of Life


The consequences of living with diabetes extend beyond physical health. Individuals reported significant negative impacts on various aspects of life, including emotional well-being, relationships, and leisure activities. Many expressed feelings of restriction, stating that diabetes limits their freedom to enjoy social gatherings or engage in sports due to concerns about managing their blood sugar levels. The following facets of life were most impacted by diabetes:


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Moving Forward: Changing the Conversation


The report highlights the urgent need for education, understanding, and empathy to dismantle the stigma surrounding diabetes. It calls upon everyone—family members, friends, colleagues, and the general public—to actively challenge misconceptions and support those living with diabetes.


Education: Informing the public about the realities of diabetes can break down harmful stereotypes and promote understanding.

Empathy: Encouraging open conversations about diabetes can create a safe space for individuals to share their experiences without fear of judgement.

Support: It is essential to create supportive environments where individuals with diabetes feel comfortable seeking help and expressing their needs.


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The Social Experiences of Living with Diabetes in Canada report is a wake-up call for all of us. By fostering understanding and empathy, we can create a more supportive society for the millions living with diabetes. Diabetes Canada is committed to changing the narrative, improving quality of life, and advocating for the needs of those affected by this condition. Together, we can work towards a future free from stigma and discrimination.


To learn more about how to contribute to this vital conversation, visit Diabetes Canada’s initiative. Together, we can make a meaningful difference in the lives of those living with diabetes in Canada.


Image Credits: Diabetes Canada



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